Publication of a manuscript for the improvement of relations between cancer scientists and patient advocates

HOUSTON, June 30, 2022 /PRNewswire/ — Theresa’s Research Foundation is delighted to announce a new manuscript titled “Improving the Odds Together: A Framework for Breast Cancer Research Scientists to Include Patient Advocates in their Research” published today in npj Breast.

An appreciation of the value of including the voice of patient advocates in cancer research has grown in recent years, however, basic research scientists are often uncertain about how to establish or maintain relationships with advocates. . The manuscript describes these obstacles and provides potential solutions, including short-term and long-term goals for overcoming these challenges.

“When scientists partner with patient advocates, the real experiences of people with cancer inform the work at every stage, rather than being an afterthought. Patients are scientists’ greatest champions – no one does not want work to succeed as much as we do. Our lives literally depend on it! commented Julia Maues, patient advocate and co-founder of GRASP.

As someone who has worked with patient advocates for many years now, I am very passionate about how patients can influence research and all that we can teach each other about how to advance progress against cancer.“, said Alana WelmPhD, Professor and Senior Director of Basic Sciences at the University’s Huntsman Cancer Institute University of Utah.

In the summer of 2021, Theresa’s Research Foundation hosted a virtual roundtable to identify opportunities to improve relationships between researchers and advocates, then presented the results at the 8e Annual Metastatic Breast Cancer Research Conference in the fall of 2021. The conference included patient advocates and scientific researchers who provided additional feedback. The results of these discussions have been compiled into the manuscript, which is co-authored by researchers and advocates.

“Many of the researchers in our group who work with advocates have a more patient-centered approach that helps them focus their research and improve their communication skills. We hope the results of the manuscript will encourage more basic researchers to work with advocates for improving cancer research and patient outcomes,” said Hillary StirePhD, Science Policy Analyst at Friends of Cancer Research.

About the Theresa Research Foundation
The mission of Theresa’s Research Foundation is to specifically fund research into metastatic breast cancer that provides better treatment options, improves patients’ quality of life and will one day lead to a cure. Each year, the organization hosts the Metastatic Breast Cancer Research Conference held in conjunction with the Lester and Sue Smith Breast Center at Baylor College of Medicine and the Huntsman Cancer Institute at the University of Utah to bring together a diverse audience to create a collaborative research environment with the long-term goal of developing curative approaches for metastatic breast cancer. To register for the 2022 event, visit https://na.eventscloud.com/ehome/index.php?eventid=676621&. To learn more about the work of Theresa’s Research Foundation, visit http://www.theresasresearch.org.

Contact: Josh Newby
(618) 580-0908, [email protected]

SOURCE Theresa’s Research Foundation

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